Hidradenitis Suppurativa Awareness's Comment Board

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TIME STEALS EVERYTHING …Sheldon Dalhouse

Dec 2, 2009 2:10 AM

if anyone have questions hit me up. been tru alot' know alot' maybe able to lead u the right way. DON'T HOLD OFF FIND A GOOD DOCTOR AND DO THE SURGERY IT WILL BE WORTH IT. I KNOW!!!!
TIME STEALS EVERYTHING …Sheldon Dalhouse

Dec 2, 2009 2:08 AM

i have this hs thing and as the people who has it know it is very painful and it sucks. i found a good doctor here in florid where i live and i have surgery on both my are pits a few months ago. i caught an infection about a week after the first surgery and had to have 4 more after that . it was a very painful 2 months' but the pain i felt from that plus the pain i felt before the the surgery does not even start to compare with the comfort i feel now. i would do it 10 time over if i have to, to feel no pain and be able to enjoy life again. next month i am going under again to get below the waist done' not looking forward to it but it will be well worth it. everyone keep your heads up. do the surgery. it is well worth it. p.s if u are over weight lose it and if u smoke quite until after your surgery( unless it's pot no tobacco at all included raps )
Just being me.....

Nov 17, 2009 1:45 PM

My husband is now in the hospital for another surgery. He just had one a month ago and it opened up with infection. Please keep him in your prayers. I know he will be ok . I thank everyone that post their comments on this wonderful myspace page. Now I know he is not going through this alone and it shows you all are fighters and will not let HS win.
Thank you and good luck to all of you.
Keith&Jess[Schmidt]♥Jessica Schmidt Online Now!

Nov 13, 2009 5:45 AM

Hey! Just stopping by to see how everyone is doing! Found a Doctor who Knows alot more than every other doctor ive been to and May be facing surgery sometime soon, They said that My best bet is to have the surgeries done, Im scared, nervous not so much as going into the surgery but afraid of the outcome afterwords such as Pain, Infection, Reaccurence in a diff spot on my body all the normal things to be nervous about. If anyone has some Soothing advice or a good old fashiond pep talk Id love to hear it right about now Thanks! xoxox Jess
DeaneenDeaneen Clark

Oct 26, 2009 3:30 AM

my husband is having surgery Monday @ 1pm we have finally found a surgeon who actually has two other HS patients! He is going to be pretty invasive tomorrow with the surgery, he said he will clean out every tunnel & all sores. Keep us in your thoughts & prayers please.....Deaneen & Randy
DeaneenDeaneen Clark

Oct 26, 2009 3:28 AM

I have read alot of articles that say that your diet & smoking have alot to do with HS
SandraSandra Lickus

Oct 25, 2009 4:39 AM

this may sound strange, but over the years i have found out certain foods really aggravate hs; such as oils/fats which are solid at room temps, hydrolyzed/hydrogenated soybean oil, nuts, highly processed white breads, caffeine, coffee, cheese, real 1/2 and 1/2 creamer, ice cream, pizza, one of the worst is frostings. when i eat these foods or any foods in this type of grouping, i have to flush my body for days and days with water to chase out the fats so they will not adhere or deposit themselves and then come out through my very sore hs ducts...and those fats do seem to do just that. i have had hs since i was in my early 20's and many doctors with no diagnosis. finally properly diagnosed last year at 36 while i was a few months pregnant.
DeaneenDeaneen Clark

Oct 23, 2009 5:40 AM

My Husband has just been admitted to St Joseph's hospital in Lexington, KY for his HS nothing seems to be helping his wounds/sores/boils he has been on heavy doses of meds including I.V. for over three months & is the same if not worse. His Dr has recommended that he have surgery, praying that he can have some relief & a better quality of life, instead of constant drainage, pain & suffering. Thanks for listening, God Bless
♥ Cherisse

Oct 22, 2009 4:47 PM

I found out I have HS this march I have my first surgery this monday. I was given 2 choices either take out strips from under my arms one by one as they heal or one big patch and I would have to have a wound vac. Just curious to know if one heals better then the other? Also I just started taking Zinic, probotics also was told to try tumeric but read that it could be a blood thinner didn't know if I should take that while starting surgeries? Thanks
Just being me.....

Oct 14, 2009 9:38 PM

My husband had his 6th surgery today and it went well but we found out the Hidradenitis has spread to another part of his body.
I just wish sometimes I could share his pain.
TayTara Faulkner

Sep 24, 2009 2:01 AM

i just had a surgery today last year had ex cession on my right armpit. . . . today was my thighs. . . .but i came away from this surgery very upset and unsatisfied. i am hoping to get some emails from people on here regarding the situation. on both thighs combined just the inside thighs i have well over a hundred spots. Today i went in expecting all the affected tissue and spots to be removed as this seems to be the only way noted to successfully help control the outbreaks. . . yet i wake up and find the surgeon has removed only 7 of the spots . . . yes just seven. . . . this seems pointless and has really upset me. . . . i am looking for some thoughts and input. . . please help and email with feedback as i am almost in tears.
Lord give me strength..…Celie Acevedo

Sep 14, 2009 2:02 PM

hi thanks for the add. I am going for my second surgery today on my armpit, wish me luck!!!
TN Girl...Go Vols

Sep 10, 2009 11:13 PM

I just had my 4th surgery for this in the groin and buttocks area...and it seems that there are some people out there that really don't understand how painful this is....I wish they would conduct more studies and even find some solid therapy or successful treatment options. Bless you for this site, at least I know there are over 300 people that know what I am going thru.
Meggy Baby©Meagan Starling

Sep 8, 2009 4:47 AM

i'm 16, i'm currently going through surgeries in brenners children hospital in NC for my HS,
my surgeon just done my breast and left under arm 3 weeks ago, it's a tough recovery, i'd like to ask for prayer and comfort from others, this gets so scary sometimes.

i have a few more surgeries to go through, next he's doing my right under arm.
then after that recovery, below my waist and thighs and stuff.. idk how many surgeries that will be.

this first surgery has seemed to be helping so far, he removed all the infection and skin ..
i did tear underneath my breast, so he'll have to do a skin graft there when i'm healed.

this surgery is amazing, i hope and pray it works.
MeganMegan Morris

Sep 5, 2009 3:13 AM

I have suffered from HS since for 16 years now, every since puberty. I have done it all...the antibiotics, the special creams, the powders..you name it...Well I am currently under the care of a wonderful doctor (plastic surgeon actually) and he has me on this regimen that has worked for me now for six months. First of all I wash my body with Hibiclense (can be bought over the counter at almost any Walmart or CVS) during every shower...I then cover my areas with Zeasorb powder (again at any Walmart or CVS) powder to prevent sweating...I take 500 mg of Ciprofloxacin (antibiotic) everday. If I have a flare up I use a topical Clindamycin (antibiotic) or if I am out of that I use the Neosporin with the pain reliever in it all over it and cover it with gauze and some gauze tape that won't irritate the skin. I repeat this everyday until the flare up busts or goes away. I wear loose fitting clothes and try to avoid sweating as much as possible...I also quit smoking and lost 50 lbs and this has made a world of difference...I feel better than I have in years...I know most of you are probably like me and have tried EVERYTHING but this combination of things have helped so very much.
♥Nothing In Life Is Per…

Jul 22, 2009 7:54 PM

Thanks so much for adding me..... I hope u get well soon!! I'm in so much pain today I've been trying to figure out how to relieve the pain, I'm tired of taking pain meds(narcotics) that get old after a while. I need to have a second surgery but I'm just tired of going under the knife, but sometimes that's the only thing that really helps. It's so hard for me to walk somtimes but I still push myself to get up and go to work, but most of the time I have to miss work alot I can't hold down a stable job cause I'm always in pain. Thanks so much for listening. I hope someone can come up with a cure 1 day.
~Sarah~Sarah Gullick

Jul 2, 2009 6:13 PM

Glad to see some activity from you. I am 36 and have had HS since puberty pretty much. I have 2 daughters that so far are unaffected but they are 11 and 9 so we'll see how puberty goes for them. Hang in there everyone, there are good men/women out there that look past the skin you're in. And I agree, I definitely support Medical Marijuana, thats the only way I get anything done because it helps dull the pain. Feel free to hit me up with any questions or comments.
*ღ* Barbie *ღ*

Jun 3, 2009 1:23 AM


Myspace Comments, Showin Some Love Comments at WishAFriend.com
HOPE YOU FEEL BETTER SOON;(
~*§andra*~

May 30, 2009 4:12 AM

Hi i was wondering im having my second surgury my first one was bad i havent healed from it and i had it done in my left side this coming month i will do it in my right side do u have any suggestions on what to do because i need to heal fast because i need to go back soon to my sports

Thank you
(thank you for not feeling lonely of having this ...since being a teenager is hard...its worst with this too)
Tiffany

May 29, 2009 12:11 PM

I found a medicine combo that actually helps!!Spironalactone and Solodyn!! This is the first time in 18 years that I have not had a breakout for over a week, I feel renewed. I just hope it continues to work.
RickRick Skelton

May 22, 2009 11:03 PM


glitter-graphics.com
He has the key to my ♥Jada Mathis

Apr 30, 2009 4:58 AM

I have a question for anyone suffering with severe hs. Has anyone who has suffered from it severly ever gotten pregnant? I ask because I would really like to have a family one day but I dont know how my body will react due to severe hs. Im curious as to how I will do through out pregnancy, labor, and delivery. Please feel free to message me with any answers or advice.
Keith&Jess[Schmidt]♥Jessica Schmidt Online Now!

Apr 27, 2009 4:59 PM

hiya ruth just thought id say hello my hs is still hs as always but its been behaving alil lately i must say if that makes any sense . But I hope everything is well your way and with everyone else out there God Bless
Foxtrot

Apr 20, 2009 10:02 PM

It's nice to see the support that is had here, it's refreshing and gives me hope... I am a lifetime HS patient, it's awful, but it makes it easier knowing I'm not alone
Kim & Gary

Apr 11, 2009 3:31 AM

P .."MARGIN-TOP: 4px; MARGIN-BOTTOM: 4px" align=center>WITCHYS WIKKED GRAPHIX
WITCHYS WIKKED GRAPHIX..
♦Misty♦

Apr 2, 2009 3:28 PM


My Thoughts
Myspace 2.0 layouts
~Renee~Renee Johnson

Mar 8, 2009 3:47 AM

Myspace Comments
Myspace Comments
MAScottMava S.

Jan 5, 2009 12:24 PM

MyHotComments.com
MyHotComments and gentle huggs
♥ Laura ♥

Dec 25, 2008 8:53 PM

The Nicest Present

Under the tree the gifts enthrall,
but the nicest present of them all,
is filling my thoughts with those who care,
and wanting our Christmas joy to share,
to you, whom I’m often thinking of,
I send abundant holiday joy and love <3

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ॐ Just Breathe Love ॐ

Infinite blessings,
♥ Laura ♥
MAScottMava S.

Dec 25, 2008 2:52 AM

MyHotComments.com
MyHotComments Wishing You all pain free days
Perfect DiamondChantell McClain

Dec 24, 2008 7:49 PM

Thank you for the add
PatriciaPatricia Heath

Dec 15, 2008 3:44 AM


Kathys Comments

Have a wonderful Christmas Ruth.
Tricia
alwayz in my heart <3

Dec 12, 2008 1:57 AM

Thank you so much for your support! I know she is lookin down on us and is also very grateful for all that has been done for her. I dont think she realized how many people really loved and cared for her until now. Thank you again! mrs. heather capezza :0)
mechanically separated …

Dec 6, 2008 3:39 PM

Getting ready to have what I
believe is my fifth surgery to
remove more lumps next week. My
new surgeon said that I am in the
last stage of HS and that I will
most likely need repeated surgery
until I am in my 50's.
Thoughts and best wishes to all HS
sufferers!
*Taken & Lovin It*Denise Richardson

Dec 5, 2008 5:13 PM

Thank you for the add and all the help
Stacci

Nov 27, 2008 3:08 AM

MyHotComments.com
MyHotComments
♥ Laura ♥

Nov 26, 2008 5:39 AM

Happy Thanksgiving
♥ Laura ♥

Nov 14, 2008 1:29 AM

Thank you Ruth!

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ॐ Just Breathe Love ॐ

Infinite blessings,
♥ Laura ♥
Keith&Jess[Schmidt]♥Jessica Schmidt Online Now!

Nov 12, 2008 5:29 PM

Hey just wanted to know what meds or creams that people have been perscribed that may be helpful to mention to my doctor I was diagnosed a couple of years ago and have had it for about 5 and still they have offered me no treatments so if anyone has any helpful tips on what i can bring up to my doctor im tierd of them telling me nothing can be done and im tierd of the pain i deal with it because we have to and even though its hard i try and put a smile on my face and not let this get the best of me but when you can barley walk or move your arms it is so frustrating but I must say that I have a wonderful husband who supports me and takes good care of me and trys to get involved with understanding all of this so if anyone has some good advice please let me know thanks and god bless jessica
Theodora

Nov 8, 2008 5:31 PM

Thanks for adding me and its so nice to have someone who gets it! Yeah for you and sponsering this site. Love and Hugs!
Ken and Becky

Oct 8, 2008 10:29 PM

Hi,I went to the doctor yesterday. He wants to do surgery undr my arm and have a plastic surgeon do a flap....which I understand is when they take muscle from the back to rebuild the arm. Has anyone had this done? I am not really sure what to expect.
Keith&Jess[Schmidt]♥Jessica Schmidt Online Now!

Oct 2, 2008 5:59 PM

Hello things are going ok recently better than my days had been with my hs also if anyone would like to add me if they ever have any advice or just need a friend going through the same icky disease as all of us feel free to add me im always excepting new friends thanks guys and have a good day !
Amber

Sep 30, 2008 12:48 AM

Just wanted to say hi to you Ruth! And to everyone on this page who has been touched by this disease in any way that it is through awareness and places like myspace where we can come together that we will all become stronger in the long run.

That was my cheesy moment.. I think I'm done.

:)
CALANDRA

Sep 21, 2008 9:53 PM

I just wanted to say thanks for your site and that I'm doing so much better since the surgery. Some days are bad and some are good. Anyways thanks for raising this awareness
Marie

Sep 8, 2008 5:04 PM

Hello, Ruth

Just thought I would say hello! I am home now recovering from surgery to reconstruct area affected by HS. It is so painful. I can barely see from the swelling around eyes.
The Williamson FamilyDamon Stephani Williamson

Sep 3, 2008 2:07 AM

Thanks for this site!!!!!!!
JoseJose Alarcon

Aug 28, 2008 1:53 AM

hi everyone has anyone ever used or bin given a cream called
SSD (1% Silver Sulfadiazine) if so, any feedback. thank you
Katherine

Aug 24, 2008 4:44 PM

Hey all, I have an HS blog that I try to keep up to date. Please add comments or add anything else you'd like me to discuss. I try to put helpful info I find on it too! Take care!
http://kmaphishsblog.blogspot.com/
Bird Girl ™Sherrie Duris

Aug 22, 2008 6:51 PM

There is a stream of well-being that is always available to us. All we have to do is allow it. Letting go of the resistance that is holding us back from the things we truly desire allows us to flow freely downstream. Once you are caught up in this current, you will start to feel an overwhelming sense of joy and all the things that you have been asking for through your thoughts will start to manifest. Life was meant to be joyful!

I wish you joy, laughter, and happiness!

~Love & Hugs~
Bird Girl ™
Just_Jen

Aug 22, 2008 3:12 AM

Just wanted to say hello! I have been trying colonic hydrotherapy and natural medicines for my HS-but the aliens keep getting worse and they are increasing. Thanks again for your wonderful page of support!
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