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LambertKeith Lambert

Dec 1, 2009 9:58 PM


Check out my page
http://www.wholikesu.net/photos/7182867.html?b=4&w=46




Let me know if you like me YES or NO
http://www.wholikesu.net/photos/7182867.html?b=4&w=46

Too Many Kids

Apr 4, 2009 7:33 AM

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Help Raise Awareness for 3-Methylcrotonyl-CoA Carboxylase Deficiency (3MCC)

Come join my cause: Help Raise Awareness for 3-Methylcrotonyl-CoA Carboxylase Deficiency (3MCC)! You will be able to recruit friends, raise money, and add a profile badge to show your support! Join_cause_button_260x52

Mrs.J & Mr. N♥

Jan 29, 2009 8:15 AM

How many tests does Colorado test for?
JaneJane Wilson

Dec 24, 2008 2:59 PM

MyHotComments.com
MyHotComments GOB BLESS EVERYONE!

GOD BLESS EVERYONE THIS CHRISTMAS AND INTO THE NEW YEAR!
Angie's Recipes™

Nov 18, 2008 7:30 PM

Marshella

Nov 4, 2008 2:54 PM

Tera, you are braver and stronger than I ever hope I never have to be. Hang in there, it will get better. I'm very sorry for your losses. Its such devastatingly bad news to hear of this. I'm so sad.
:-(
Eileen

Nov 4, 2008 12:44 PM

Tera, my deepest sympathies to you and your children. My thoughts and prayers are with you in this very difficult time.
PamPAMELA TYE KLEINERT

Oct 30, 2008 11:49 PM

MyHotComments.com
MyHotComments
BigSisD2HPenny Frayer-Jaquith

Oct 21, 2008 10:24 PM

I'll see if I can get a pic of Nate to post on blog with his story!
Mrs.J & Mr. N♥

Oct 13, 2008 2:16 AM

Hope you had a great weekend. Also, thanks for all your doing to help bring awareness to screening babies.
Your foundation is great!
judy

Oct 4, 2008 3:56 PM

have a nice weekend!
Too Many Kids

Sep 29, 2008 1:55 PM

Thank you for adding my little man's photo!! :)
Eileen

Sep 27, 2008 12:30 PM

Thank you very much for adding our little angels picture!! XOXO
It's Still Rock & Roll …Jhyrve Sears

Sep 20, 2008 6:11 AM

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Support Krabbe Disease

Come join my cause: Support Krabbe Disease! You will be able to recruit friends, raise money, and add a profile badge to show your support! Join_cause_button_260x52

Hey Guys,
Will you support me in my effort to spread awareness? No one should have to live with this terrible disorder. Manny of you watched what it did to me and I don't want to let another person go through what I’ve gone though. So educate yourselves tell you family and friends that with early detection (like Newborn Screening) that you can stop this disorder in its tracks.
So be part of the solution and tell your friends and family to support our Newborn Screening efforts in the fight against Krabbe!

Zoe's Fundraiser'sZoe Gavriilidis

Sep 19, 2008 7:29 PM

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Support Krabbe Disease

Come join my cause: Support Krabbe Disease! You will be able to recruit friends, raise money, and add a profile badge to show your support! Join_cause_button_260x52

Mrs.J & Mr. N♥

Sep 8, 2008 9:43 PM

Thanks for the add! What your foundation is doing is great. I'm glad what you are doing to help spread the word and by having you as a myspace friend, I hope I can help some more.
Zoe's Fundraiser'sZoe Gavriilidis

Sep 2, 2008 10:44 PM

I just wanted to let you know that I received the package of pamphlets and pins for Zoe's Fundraiser. Thank you sooooo much for your help!!!!!!

-- Kristin De Lisa
cassandra

Sep 1, 2008 5:09 AM

Have a happy birthday.
† Mike & Kristin †MikeAndkristin Delisa

Aug 28, 2008 5:07 PM

Thanks for the add!

Hi! My name is Kristin De Lisa. I think that what you guys are doing with your foundation is awesome! Last March my good friends baby was diagnosed with Krabbe disease. Her name is Zoe Alexis Gavriilidis. Since then we have just watch helplessly as poor Zoe's life is taken away from her by this horrible disease. This is probably the second time you will have heard from me, as I recently sent you guys an email about Zoe's Fundraiser. Thank you from the bottom of my heart for all you guys do!!

Please read more about Zoe at ..www. caringbridge.
org/visit/zoealexis..

-Kristin De Lisa
???HEY=SISS!!!Sis Sis

Aug 27, 2008 5:39 PM

you guys are so wonderful.
cassandra

Aug 2, 2008 7:42 AM

I hope that you have a great weekend.
cassandra

Jul 28, 2008 1:22 AM

Thank you for adding me to your list of friends.
BigSisD2HPenny Frayer-Jaquith

Jul 10, 2008 7:31 AM

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Hey Save Babies,

I just set up tons of cool stuff for Zelda Phlugenbacher's habitat.

Come check it out!



PamPAMELA TYE KLEINERT

Jul 2, 2008 9:29 PM

Layouts & More @ ColorArmy.Com
Secretary Girl X

Jul 1, 2008 7:03 PM

I work for the Metabolism/Biochemical Genetics department in Indianapolis, IN. Diagnosing and treating children just like yours with love & the parents with respect. Thanks for a great website.
Good luck with your endeavor to educate the world about Newborn Screening!
*Kirsten*

Jul 1, 2008 4:39 AM

Thanks so much for adding me .. Your story is so amazing we do need to get the word out more about having new born screeing I have been telling so many friends and family about this I wish I had arms to hug all of you much love to all...
Mikka

Jul 1, 2008 3:29 AM

My son Gavin was diagnosed at 9 days of age with 3MCC.
Thanks to newborn screening we are able to help him live a normal, healthy life!!!
BigSisD2HPenny Frayer-Jaquith

Jul 1, 2008 3:12 AM

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Hey Save Babies, I just bought you as my PET!
Click here to find out how much I think you're WORTH!


TexasTanginessShelly Grabow

Jun 30, 2008 1:18 AM

Thank you for posting pictures of my sons Caleb and Noah. I hope your page will reach others and help save the lives of babies.
Shelly Grabow
TexasTanginessShelly Grabow

Jun 30, 2008 1:13 AM

Thank you for posting pictures of my sons Caleb and Noah. I hope your page will reach others and help save the lives of babies.
Shelly Grabow
Kelsey

Jun 29, 2008 10:25 PM

Thank you for making everyone aware of new born screening. You're an amazing person.
:-)
Too Many Kids

Jun 28, 2008 3:10 AM

My 2 1/2 month son was diagnosed with 3mcc, an organic acid disorder, through newborn screening. Because of the early diagnosis he is happy, healthy and thriving!!! 3mcc can be fairly easily managed with diet and supplements but can be life threatening if not diagnosed. Thank you for helping bring awareness to the
importance of expanded newborn screening!
PamPAMELA TYE KLEINERT

Jun 26, 2008 5:59 PM

I agree that you have done an amazing job with the page. You are an amazing person to take on so much.
Eileen

Jun 26, 2008 2:21 AM

Wow! What a beautiful job putting this site up! It's just perfect! Thank you from Olivia age 3(BKT) and her Mommy Eileen!
Babyland Reborn Nursery

Jun 25, 2008 9:09 PM

What a wonderful idea! I absolutely love it! ~ Beverly ~
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