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True Guts's Comment Board

Listing 1-50 of 553

Name	Comment
LisonLison Hackett	Nov 2, 2008 5:25 PM This comment was sent by your friend via the Causes app. To block this app and all communications from it, click Here. ------------------------------------------- Come join my cause: Crohn's Disease & Ulcerative Colitis! You will be able to recruit friends, raise money, and add a profile badge to show your support!
LisonLison Hackett
DJ Bummer / Crohns BF	Apr 8, 2008 7:04 PM I dont know about the rest of the people that are friends here...but I never really realize sometimes that Crohn's Disease does exisit outside of me. I never really have met anyone with it - or knew as much about it. But, I guess there are more people out there - and worse than I am. I figured I would write a comment expressing that maybe Crohn's is much bigger than I once thought - and that this site is a good place to type up anything Crohn's.
DJ Bummer / Crohns BF
Mrs. CombsDavina Combs	Apr 15, 2008 3:19 AM Thanks for the add... After going to the doctor for 4 years crying about how much pain I was in, and after them telling me it was "normal" pain.. and telling me it was in my head... I was at a wedding and passed out, my husband rushed me to the ER and I woke up with 7 doctors standing over me telling me I needed emergency surgery that I was dying... I woke up to this scar and the removed my intestines, I was only 24... I lost my job, I lost my house, I lost everything and am living in my mom's living room now... All because of Crohn's Disease. And I can't eat without getting sick, I can't go through a day without migraines... And they told me it was in my head, It's not fair! If I had cancer I would have a chance to recover.... but this just keeps getting worse... Everyone needs to spread the word, its not in your head, don't let your friends or family end up like me... !! Spread the knowledge!
Mrs. CombsDavina Combs
Mary Beth	Apr 28, 2008 3:40 PM Hi Josh..I just designed a new tattoo. I am going to have a purple crohn's awareness ribbon done on World Crohn's and Colitis Day. It fits my personality ,and will be a 365 day reminder for all who see it. Think I'm crazy????
Mary Beth
Karen's HPS KornerKaren Tillman	Jul 3, 2008 5:40 PM MyHotComments
Karen's HPS KornerKaren Tillman
Jen	Jul 4, 2008 1:01 AM
Jen
Jen	Jul 4, 2008 1:01 AM
Jen
Mike A.k.A [Woody]Michael woods	Jul 8, 2008 2:53 AM anyone from ohio?
Mike A.k.A [Woody]Michael woods
JasonJason Vaughn	Aug 8, 2008 5:11 AM I'm gonna be taking part in a clinical trial pretty soon, for Prochymal: an adult mesenchymal stem cell treatment being tested for Crohn's that has been given a fast-track status by the FDA. It has shown great promise, and with basically no side-effects. Many who've tried it have achieved remission. So, for those who've been holding off surgery (like me), this --or a variation of it-- may be what we've been waiting for! Look into it.
JasonJason Vaughn
AdDiCtEd 2 TaTsrachel nuessly	Aug 13, 2008 12:15 AM This comment was sent by your friend via the Causes app. To block this app and all communications from it, click Here. ------------------------------------------- Come join my cause: Crohn's Disease & Ulcerative Colitis! You will be able to recruit friends, raise money, and add a profile badge to show your support!
AdDiCtEd 2 TaTsrachel nuessly
AdDiCtEd 2 TaTsrachel nuessly	Oct 2, 2008 3:13 PM MyHotComments
AdDiCtEd 2 TaTsrachel nuessly
Shazzasharon king	Jul 2, 2008 5:16 AM
Shazzasharon king
JoAnna KaiJoAnna kai Cobb	Jun 30, 2008 7:57 PM Have A Happy Fourth! ♥ Jo
JoAnna KaiJoAnna kai Cobb
Mary Beth	May 27, 2008 10:30 PM Josh..this is what I did for World Crohn's and Colitis Day. The koi fish represents strength and courage in the face of adversity ( my crohn's and other health problems) it is swimming upstream, so that represents that I am still struggling and have been for the last 37 years with this adversity, the blossoms are beautiful flowers that represent the fragility of the human spirit...they also grow into beautiful flowers from the darkest dankest water, and there are three awareness ribbons..one for crohn's and fibromyalgia, one for Rhuematoid arthritis and one for panic and anxiety disorder. I am getting it colored in this fall after gardening season..I dont want to wreck the ink job outside. Its already very empowering. The guy who designed it was an apprentice of a guy who died last year and he had crohn's.
Mary Beth
Stefanie	May 23, 2008 8:07 PM I haven't heard about today being the 2nd annual Crohn's and Colitis day is it always going to be the 23rd of may or just going to be sometime during colon health week? Well I am wearing purple anyway!
Stefanie
Mary Beth	May 23, 2008 11:37 AM Happy World Crohn's and Colitis Day Josh! You are a hero to so many of us.
Mary Beth
MollyMolly Magowan	May 12, 2008 5:27 AM Hello True Guts stranger..I've got lots of updates for ya. Hope all is well...
MollyMolly Magowan
Erica	May 14, 2008 1:21 AM This may be a stupid question, but is World Crohn's & Colitis Day an every year thing on May 23rd?
Erica
Mary Beth	May 19, 2008 10:25 AM Hi Josh..what are your plans for the second annual World Crohn's and Colitis Day?
Mary Beth
HevyArmz	Apr 24, 2008 2:53 AM Thank you for working so hard to help all of us dealing with crohn's....your work is deeply appreciated. Ben a.k.a. HevyArmz
HevyArmz
Ashley☠Ashley Pierce Online Now!	Mar 29, 2008 3:17 PM JOSH!!!! Thank you so much for the donation!!!! Do you think you could send us some more shirts because we are going to have alot of walkers and we want to all be identifiable!!! It would be great!!!! How are you? Im at the mayo.. getting ready to take a shower .. wish me luck!!! Love ya!!!! Hope all is well... Ashley
Ashley☠Ashley Pierce Online Now!
Ashley☠Ashley Pierce Online Now!	Mar 24, 2008 2:57 PM http://www. active. com/donate/takestepsLV07/BPierce7 Please help me... Im turniing 21 soon and things just get worse, Check out the link my dad started to donate or even just come out for support . I missed the walk last year from being in here... and i'll be damned if i miss this one too. I leave monday for the Mayo in minnesota ... so well have to see from there. Please dont forget about me.... i know im not on very much... but thats simply from being too weak or hurting too much. Well thanks for your time... Peace and Love Ashley
Ashley☠Ashley Pierce Online Now!
SaRaH	Mar 1, 2008 6:34 PM HAPPY BIRTHDAY!!!!! Wishing you good health.
SaRaH
Megan	Mar 1, 2008 11:43 PM hey josh. ii haven't been on your site for a while but i caught your message and i just read through your 2 new sites. it was the first time i heard about humira so that was really interesting. im not in very good health at the moment so i'm considering these two options. i've never had a problem with needles but i just had m appendix out and during the two nights in hospital afterwrds i had a bad experience with needles so i might have a hard time trying a new drug. well anyway i beleive youve had a birthday recently so happy birthday. hope you had a good time. peace and love megan
Megan
luciferab	Mar 1, 2008 12:57 PM happy birthday to you! best wishes for a painfree time.
luciferab
True Guts	Feb 29, 2008 4:52 PM Hello Everyone, I hope this message finds you well and in good health. I receive many e-mails and questions on our MySpace page about the drugs Humira and Remicade. Some of the questions I can answer, some of them I can't. Plus, everybody is different, so my experiences with Crohn's are different than someone else's experience with Crohn's. With that said, the True Guts team and I have developed two new forum websites. www. crohnshumira. com and www. crohnsremicade. com. Here people can post questions, share experiences, and find comfort and support as they deal with Crohn's. I am proud of the team for putting these two sites together and I look forward to each community growing. Please check out both sites and use them. They are a great way to gain awareness about Crohn's Disease and a place for you to let out your frustrations, concerns or even success stories. Sincerely, Josh Golder
True Guts
I♥him!	Feb 28, 2008 9:18 PM Hey I hear everyone talking about Fistuals. I dont have 1 or any but WHAT IS IT! ive been looking on the web and cant figure it out
I♥him!
HOST OF THE BIG ROCK SH…Tina Peek	Feb 28, 2008 2:50 PM Wishing you a healthy and happy birthday!! All the best :) Hugs, Tina
HOST OF THE BIG ROCK SH…Tina Peek
S U Z A N N E	Feb 28, 2008 5:57 AM
S U Z A N N E
KaelanSkyeKaelan Lunde	Feb 26, 2008 6:59 PM Hello Everyone! You're all in my prayers! I hope everyone is feeling as good as can be expected!! Hang in there, be strong. Love to you all!!
KaelanSkyeKaelan Lunde
♥Mrs. Wicked♥	Feb 26, 2008 2:43 PM Hi, Everyone - My doctor just put me on Entocort, Cipro and Zantac until I have a CT scan to see if I'm a candidate for either surgery or Remicade. I'd love to hear about people's experiences, side effects, etc. with both Entocort and Cipro. The Cipro I'll be taking twice day (500 mg tablets) for a few months. The Entocort is 3 3MG a day. I HATE taking meds. I had been off of all Crohn's meds for the past few years, and now it's all catching up with me. Thanks! P.S. Feel free to email me at my regular address: thezionzoo@yahoo.com
♥Mrs. Wicked♥
I♥him!	Feb 10, 2008 10:22 PM Hey everyone.. I dont write on here much but I just got outta the hospital and I need support. I just had 2 major surgerys within 1 1/2 weeks. I had my colon taken out and then i got a leak so they had to do the 2nd surgery and fix it, with putting a bag on. I feel like my life is now over. I know its only temp but i feel like this is the worse. It has def changed my life alot since the surgery and the arrival of being home. please someone who is or going through this, please please help! Jessica
I♥him!
Darci-Lynn	Feb 3, 2008 5:21 AM Hi everyone! i have a little question to ask! here goes: I am 19, and have been with the same (and only Pediatric GI in alaska) doctor since i was diagnosed 11 years ago, but he is leaving state and its time for me to go to a grown up doc. does anyone have any tips for a smoother transistion, to feel comfortable with the new doc? i have problems telling them how i feel and whats going on "down there" with fistulas and stuff, and i was very comfy with my old doc. hes already changing things, and i dont want them to. anyone else gone through this? its especially hard right now, im in the middle of a bad flare up, and yeah. yuck. thanks guys! Oh, also, has anyone heard of any other drug out there thats like humira/remicade? ive run the course of remicade, and the humira (im on 2x the dose) is getting weaker too. im so scared im gonna go through all of them. message me please.
Darci-Lynn
InkaqueenCarrie Meadows	Jan 28, 2008 10:58 PM Hey Josh, Happy 2008! Just wanted to say hello and pass along that my gastro bought some copies for his clinic in Santa Barbara and he's been giving them to new patients. Totally stoked! Take care, Carrie
InkaqueenCarrie Meadows
Mary Beth	Jan 9, 2008 3:28 PM Hi Josh! Happy New Year! When is the 2nd annual Crohn's and Colitis Day in 2008? I would like to start writing an article to submit to the local newspapers. Thanks!
Mary Beth
Angela	Jan 4, 2008 8:14 PM Hi everyone, I am just curious if having crohn's disease automatically eliminates you from being able to do a law enforcement job? I read that the military will not let someone join if they have crohn's disease for example.
Angela
Cindy (27csomer)Cindy Somerville	Dec 31, 2007 5:22 AM Happy New Year Comment Graphics Comments & Glitter Graphics for Myspace, Hi5, Orkut, Friendster QUICK QUESTION: Is True Guts out in a video? I was reading through your page about it being the first feature film on Crohns etc..and I would love to see it!!!!
Cindy (27csomer)Cindy Somerville
I♥him!	Nov 29, 2007 2:39 AM Hey guys! To everyone who reads this and is going through what I am right now, I need to talk to people. I am going to be having my first surgery. After being dignosed for a lil over a year, I have to have my whole large intestine taken out and have my small bowel reattached to the rectum. This will all be completed in one step. I have never had to go through anything like this before, so this is why i want to talk to people about this. Please let me know.. Surgery is on Jan 21, 08... Everyone, please!!!!! Jessica
I♥him!
Stacey	Nov 26, 2007 5:49 AM GREAT NEWS FOR ANYONE FACING THE HIGH COST OF HUMIRA FOR CROHN'S! If you have insurance and it is still not quite enough to cover the cost of your Humira, Humira has a program to help us! The program is called Co-Pay PLUS and is a Financial Assistance Program from myHUMIRA. Feel free to email me if you would like more info. I called a friend who works for Abbott Immunology and I told her that I was not sure I could afford the Humira-even with my insurance. She said that Abbott just launched this program and she sent me an enrollment card. The program covers $1000 for the first month, and $325/month for the next 11 months to help out for a year. You can apply to re-enroll after a year. Hope this helps-- Stacey
Stacey
Cindy (27csomer)Cindy Somerville	Nov 21, 2007 1:56 PM I was looking on your site, so sorry if I missed it, but is the movie True Guts out in DVD? Trying to figure out how I can buy a few copies...
Cindy (27csomer)Cindy Somerville
Mike A.k.A [Woody]Michael woods	Nov 16, 2007 2:32 AM Hey whats up everyone, got a question for anybody? having a hard time with some people at my job to understand why sometimes i miss days, i get hassled, i dont think they get it.
Mike A.k.A [Woody]Michael woods
GEORGINA H. SMITHGeorgina Smith	Oct 30, 2007 12:06 AM Hey Josh... I hope you are healthy and happy. We need to talk. Good things are happening! PS... I just saw the video from the screening in SF. Thanks you for all that you do! ~Georgina
GEORGINA H. SMITHGeorgina Smith
Jordan Sweeney (Now on …	Oct 18, 2007 5:32 AM if u have IBD please listen to my music! u can def. relate to it!
Jordan Sweeney (Now on …
Megan	Oct 17, 2007 7:10 AM hey josh how are you? are you well. do you know much about this new drug remicade?
Megan
AdDiCtEd 2 TaTsrachel nuessly	Oct 13, 2007 5:37 PM everyone that has crohn's knows what it's like to be in pain. well my husband is very sick an needs support from people alike. he has tried alot of medicine an nothing seems to be working. he is now in the hospital with multiple fistulas. he has been put on t.p.n for a month or so. the doctors are hoping that this works for a while. they might have to remove his small bowel. does anyone know about any other medicines other than { imuran, pentasa, remicade, asacol, humira, steroids, an a few more} any names would help. thanks [ contact me on my profile}
AdDiCtEd 2 TaTsrachel nuessly
kelz/melz/melushka	Oct 9, 2007 3:36 AM I've blogged the first part of my Crohns Disease experience if anyone wants a read... :)
kelz/melz/melushka
Allison [MG]	Sep 28, 2007 3:55 AM Hi everyone, My sed rate has gone from 40-something to 24 in the last week! Yay for prednisone! Hope everyone is doing a lot better than I have this past month.
Allison [MG]
Erica	Sep 16, 2007 3:39 AM Congrats on the award. Keep up the good work guys.
Erica
METAL 1981 Stubby Burrell	Sep 12, 2007 3:14 AM doing real good thank god =)
METAL 1981 Stubby Burrell